Company: National Hemophilia Foundation
Job title: Director, External Affairs
Brendan Hayes is the Director of External Affairs at the National Hemophilia Foundation and leads NHF’s Gene Therapy Initiative which includes developing accurate, non-biased educational content on gene therapy, working with payers and policymakers to ensure patients have access to these groundbreaking therapies, and strengthening collaborations with national rare disease and patient advocacy organizations. In addition, she provides policy and advocacy expertise to NHF Chapters at the state and federal level. Brendan serves on national committees, task forces and working groups focused on gene therapy for rare disorders. She is both a speaker and moderator at national conferences and weaves in the importance of engaging patients in drug and novel technologies development. She graduated from the University of Texas at Austin with a business degree in Finance and Risk Management and Insurance.
Panel Discussion – Assessing the Commercial Realities of Launching Gene Therapies in the Blood Disorder Space 9:30 am
Determining the most effective ways of demonstrating product value Ensuring accessibility of products through co-operation with payers and patients Discussing creative solutions to increase accessibility to patients by overcoming cost and geographic barriersRead more
day: Day One